EP.170/ How to Live Well with Endometriosis and Ehlers-Danlos with Natalia Kasnakidis
Do you get full body pain? Does it affect your muscles, nerves or joints? Do you find that you need to rest after walking or find you tired more easily than others?
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It might not just be endometriosis.
Ehlers-Danlos Syndrome is a group of 13 conditions which all affect connective tissue (collagen) in the body. Most are rare, but one type called hypermobility EDS is common - and out of those with this type of EDS, 6-23% have endometriosis. But that’s not where the connection ends…
32-77% of those with EDS have vulvodynia and or pain with sex.
33-75% have heavy menstrual bleeding.
73-93% have painful periods.
Additionally, histamine intolerance caused by Mast Cell Activation Syndrome is a co-condition of Ehlers-Danlos syndrome, and we also know that overactive mast cells play a role in endometriosis. Not only can this cause more painful periods, but it can also create problems like allergies and eczema to name a few.
Ehlers-Danlos Syndrome is also a huge risk factor for SIBO, and as you may now know, at present SIBO is estimated as affecting 80% of the endo population.
I could go on with the overlapping symptoms and connections, but instead, I’ll let you hear it first hand from Natalia Kasnakidis who is not only an endometriosis warrior, but is also living with Ehlers-Danlos syndrome, histamine intolerance and potentially postural tachycardia syndrome.
In this episode we talk about:
What the Ehlers-Danlos Syndromes are and how common they are.
The signs and symptoms to look out for and Natalia’s own experience with her symptoms.
The journey she tool to diagnosis and her tips for getting diagnosed.
The co-conditions of EDS and their symptoms.
Her key strategies for living well with endometriosis and EDS.
Get my free Christmas endo recipe ebook here. With five delicious endo-friendly recipes, This Endolife, At Christmas, is a mini cookbook to help you live and thrive with endometriosis at Christmas. These recipes are anti-inflammatory, plant-based, gluten-free, dairy-free, egg-free and contain no added sugar! Featuring...
Sausage, Pecan and Chestnut Stuffing
Carrot Bacon Pigs in Blankets
Salted Caramel Cheesecake
This Isn't Just Custard, This Is Endo-Friendly Very Vanilla Custard
Christmas Spiced Plum and Blackberry Crumble
Show notes
https://www.thelondonhypermobilityunit.co.uk
https://join.sibosos.com/purchase/74117-Joint-Hypermobility-Syndromes?_ga=2.165935037.2051281346.1639065076-1956767515.1601293146
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My cookbook This EndoLife, It Starts with Breakfast is out now! Get 28 anti-inflammatory, hormone friendly recipes for living and thriving with endometriosis. Order your copy here.
If you feel like you need more support with managing endometriosis, you can join Your EndoLife Coaching Programme. A 1-to-1 three month health and life coaching programme to help you thrive with endometriosis. To find out more about the programme and to discuss whether it could be right for you, email me at hello@thisendolife.com or visit my website.
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My free guide ‘Managing Endometriosis Naturally’ is perfect for anyone just starting out on this journey of managing and reducing their symptoms. Download here.
My free Endometriosis Diet Grocery List is a pdf list that includes all the foods I buy on a monthly basis, categorised into easy sections. I share my personal endometriosis diet plan, free recipe resources, recommendations to help you get started with the endometriosis diet and nutrition tips. Download here.
My free “Endometriosis Symptom Tracker” could help you begin to understand the subtle patterns in your endometriosis symptoms. As always, this guide doesn’t replace your medical treatment and is not intended to treat or cure endometriosis, but provides you with options that helped me to live well with endometriosis. Download here.